Islamic bioethical discourse in incidental findings: Research genetic context
نویسندگان
چکیده
منابع مشابه
Incomplete knowledge of the clinical context as a barrier to interpreting incidental genetic research findings.
Gliwa and Berkman (2013) elegantly outline many of the challenges posed by the concept of incidental genetic findings. However, there is another critical barrier to interpreting human genetic variation that is unrelated to the specific disease under study. Research study participants often lack extended phenotype and family history data. Regardless of the anticipated advances in sequencing tech...
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The approach to incidental research findings in children emerges by considering the child-parent relationship and balancing divergent interests and preferences. Incidental findings with clear and proximate clinical importance should be disclosed to both. We recommend that particularly sensitive or private information (e.g., pregnancy or drug use) should be disclosed to the adolescent first, whi...
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The Human Genome Project showed that there is significant genetic variation within the population. Current research is accumulating large databases that may reveal genetic variations associated with disease or health risks, even if not intended as part of the study design. These incidental findings create legal, ethical, and financial challenges for researchers. Current federal and internationa...
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J MWardlaw professor of applied neuroimaging and honorary consultant neuroradiologist, H Davies research ethics adviser , T C Booth consultant neuroradiologist , G Laurie professor of medical jurisprudence, A Compston professor of neurology, C Freeman professor of psychiatry and clinical lead for accreditation , M O Leach professor of physics as applied to medicine , A D Waldman consultant neur...
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A healthy adult volunteers to serve as a control subject in an fMRI study. The subject provides informed consent, and a tailored protocol designed for the particular study then is executed. In most cases, the research subject altruistically assumes that the result will benefit science in some way. However, does science owe the volunteer a fair assessment of the information not relevant to the f...
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ژورنال
عنوان ژورنال: Innovations in Global Health Professions Education
سال: 2019
ISSN: 2414-4398
DOI: 10.20421/ighpe2019.01.07